Patients' and professionals' views on managing fibromyalgia
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http://hdl.handle.net/10045/37218
Títol: | Patients' and professionals' views on managing fibromyalgia |
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Autors: | Briones Vozmediano, Erica | Vives-Cases, Carmen | Ronda-Pérez, Elena | Gil-González, Diana |
Grups d'investigació o GITE: | Salud Pública |
Centre, Departament o Servei: | Universidad de Alicante. Departamento de Enfermería Comunitaria, Medicina Preventiva y Salud Pública e Historia de la Ciencia |
Paraules clau: | Fibromyalgia | Pain management | Patient care | Therapy | Qualitative research |
Àrees de coneixement: | Medicina Preventiva y Salud Pública |
Data de publicació: | de febrer-2013 |
Editor: | Pulsus Group |
Citació bibliogràfica: | Pain Research & Management. 2013, 18(1): 19-24 |
Resum: | BACKGROUND: Managing fibromyalgia is a challenge for both health care systems and the professionals caring for these patients, due, in part, to the fact that the etiology of this disease is unknown, its symptoms are not specific and there is no standardized treatment. OBJECTIVE: The present study examines three aspects of fibromyalgia management, namely diagnostic approach, therapeutic management and the health professional-patient relationship, to explore specific areas of the health care process that professionals and patients may consider unsatisfactory. METHODS: A qualitative study involving semistructured interviews with 12 fibromyalgia patients and nine health professionals was performed. RESULTS: The most commonly recurring theme was the dissatisfaction of both patients and professionals with the management process as a whole. Both groups expressed dissatisfaction with the delay in reaching a diagnosis and obtaining effective treatment. Patients reported the need for greater moral support from professionals, whereas the latter often felt frustrated and of little help to patients. Patients and professionals agreed on one point: the uncertainty surrounding the management of fibromyalgia and, especially, its etiology. CONCLUSION: The present study contributes to a better understanding regarding why current management of fibromyalgia is neither effective nor satisfactory. It also provides insight into how health professionals can support fibromyalgia patients to achieve beneficial results. Health care services should offer greater support for these patients in the form of specific resources such as fibromyalgia clinics and health professionals with increased awareness of the disease. |
Patrocinadors: | The present study was partially financed by the National Observatory of Women’s Health of the Spanish Ministry for Health, Social Policy and Equality, and is part of a wider research project financed by the Regional Valencian Government’s Joan Gil-Albert Cultural Institute in Alicante (Spain) and will be used as part of Erica Briones’ PhD training programme and dissertation at the University of Alicante, Spain. |
URI: | http://hdl.handle.net/10045/37218 |
ISSN: | 1203-6765 (Print) | 1918-1523 (Online) |
Idioma: | eng |
Tipus: | info:eu-repo/semantics/article |
Drets: | © 2013 Pulsus Group Inc. |
Revisió científica: | si |
Versió de l'editor: | http://www.pulsus.com/journals/journalHome.jsp?sCurrPg=journal&jnlKy=7&fold=Home |
Apareix a la col·lecció: | INV - SP - Artículos de Revistas INV - Investigación en Género - Artículos de Revistas Institucional - IUIEG - Publicaciones INV - EQUIDIVERSIDAD - Artículos de Revistas |
Arxius per aquest ítem:
Arxiu | Descripció | Tamany | Format | |
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2013_Briones_etal_PainResManag.pdf | Acceso restringido | 529,39 kB | Adobe PDF | Obrir Sol·licitar una còpia |
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