Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study
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Título: | Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study |
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Autor/es: | Martí-García, Celia | Fernández-Alcántara, Manuel | Suárez López, Patricia | Romero Ruiz, Carolina | Muñoz Martín, Rocío | García-Caro, M. Paz |
Grupo/s de investigación o GITE: | Psicología Aplicada a la Salud y Comportamiento Humano (PSYBHE) |
Centro, Departamento o Servicio: | Universidad de Alicante. Departamento de Psicología de la Salud |
Palabras clave: | Palliative care | Qualitative | Mixed methods | Bereavement | Relatives | End-of-life care | Caregiver |
Área/s de conocimiento: | Personalidad, Evaluación y Tratamiento Psicológico |
Fecha de publicación: | 14-dic-2020 |
Editor: | PeerJ |
Cita bibliográfica: | Martí-García C, Fernández-Alcántara M, Suárez López P, Romero Ruiz C, Muñoz Martín R, Garcia-Caro MP. 2020. Experiences of family caregivers of patients with terminal disease and the quality of end-of-life care received: a mixed methods study. PeerJ 8:e10516 https://doi.org/10.7717/peerj.10516 |
Resumen: | The aim of this study was to analyze the perceptions and experiences of relatives of patients dying from a terminal disease with regard to the care they received during the dying process, considering the oncological or non-oncological nature of the terminal disease, and the place where care was provided (at home, emergency department, hospital room, or palliative care unit). For this purpose, we conducted a mixed-methods observational study in which two studies were triangulated, one qualitative using semi-structured interviews (n = 30) and the other quantitative, using questionnaires (n = 129). The results showed that the perception of relatives on the quality of care was highly positive in the quantitative evaluation but more critical and negative in the qualitative interview. Experience of the support received and palliative measures was more positive for patients attended in hospital in the case of oncological patients but more positive for those attended at home in the case of non-oncological patients. |
Patrocinador/es: | This study is part of a research project financed in a public and competitive call by the Health Ministry of the Junta de Andalucía (Variability of clinical practice and conditioning factors in the implementation of end-of-life care processes, Ref no PI-0670 -2010). |
URI: | http://hdl.handle.net/10045/111263 |
ISSN: | 2167-8359 |
DOI: | 10.7717/peerj.10516 |
Idioma: | eng |
Tipo: | info:eu-repo/semantics/article |
Derechos: | © 2020 Martí-García et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, reproduction and adaptation in any medium and for any purpose provided that it is properly attributed. For attribution, the original author(s), title, publication source (PeerJ) and either DOI or URL of the article must be cited. |
Revisión científica: | si |
Versión del editor: | https://doi.org/10.7717/peerj.10516 |
Aparece en las colecciones: | INV - PSYBHE - Artículos de Revistas |
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