Life Experiences of People Affected by Crohn’s Disease and Their Support Networks Scoping Review
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Título: | Life Experiences of People Affected by Crohn’s Disease and Their Support Networks Scoping Review |
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Autor/es: | Garcia-Sanjuan, Sofia | Lillo-Crespo, Manuel | Sanjuan-Quiles, Angela | Gil-González, Diana | Richart-Martínez, Miguel |
Grupo/s de investigación o GITE: | Enfermería y Cultura de los Cuidados | Calidad de Vida, Bienestar Psicológico y Salud | Salud Pública |
Centro, Departamento o Servicio: | Universidad de Alicante. Departamento de Enfermería | Universidad de Alicante. Departamento de Enfermería Comunitaria, Medicina Preventiva y Salud Pública e Historia de la Ciencia |
Palabras clave: | Scoping review | Nurse specialist | Crohn’s disease | Life experience | Meaning | Social support | Inflammatory bowel disease |
Área/s de conocimiento: | Enfermería | Medicina Preventiva y Salud Pública |
Fecha de publicación: | 23-jul-2014 |
Editor: | SAGE Publications |
Cita bibliográfica: | Clinical Nursing Research. 2014, July 23. doi:10.1177/1054773814543828 |
Resumen: | This scoping review identifies and describes relevant studies related to the evidence published on life experiences and perceived social support of people affected by Crohn’s disease. Twenty-three studies were definitely selected and analyzed for the topics explored. The overall findings show patients’ needs and perceptions. There is a lack of evidence about patients’ perceived needs as well as the understanding of social support that has contributed to improve their life experiences with that chronic illness. Lack of energy, loss of body control, body image damaged due to different treatments and surgeries, symptoms related to fear of disease, feeling burdened loss related to independence, and so on are some of the concerns with having to live with those affected by the Crohn. To underline those experiences through this scoping review provides valuable data for health care teams, especially for the nursing profession, considered by those affected as one of the main roles along the whole pathological process. This review provides the basis for developing broader research on the relatively underexplored topics and consequently improves specific programs that could address patients’ needs. |
Patrocinador/es: | This research is supported by the grant VALI+D (ACIF/2013/141) awarded to Sofía García-Sanjuán (Conselleria de Educación, Cultura y Deporte, Generalitat Valenciana, Spain). |
URI: | http://hdl.handle.net/10045/44432 |
ISSN: | 1054-7738 (Print) | 1552-3799 (Online) |
DOI: | 10.1177/1054773814543828 |
Idioma: | eng |
Tipo: | info:eu-repo/semantics/article |
Derechos: | © 2014 by SAGE Publications |
Revisión científica: | si |
Versión del editor: | http://dx.doi.org/10.1177/1054773814543828 |
Aparece en las colecciones: | INV - CV, BP Y S - Artículos de Revistas INV - EYCC - Artículos de Revistas INV - SP - Artículos de Revistas Institucional - IUIEG - Publicaciones INV - PCC-HOI - Artículos de Revistas |
Archivos en este ítem:
Archivo | Descripción | Tamaño | Formato | |
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2014_Garcia-Sanjuan_etal_ClinNursingRes_final.pdf | Versión final (acceso restringido) | 428,41 kB | Adobe PDF | Abrir Solicitar una copia |
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