Life Experiences of People Affected by Crohn’s Disease and Their Support Networks Scoping Review

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Título: Life Experiences of People Affected by Crohn’s Disease and Their Support Networks Scoping Review
Autor/es: García Sanjuán, Sofía | Lillo-Crespo, Manuel | Sanjuan-Quiles, Angela | Gil-González, Diana | Richart-Martínez, Miguel
Grupo/s de investigación o GITE: Enfermería y Cultura de los Cuidados | Calidad de Vida, Bienestar Psicológico y Salud | Salud Pública
Centro, Departamento o Servicio: Universidad de Alicante. Departamento de Enfermería | Universidad de Alicante. Departamento de Enfermería Comunitaria, Medicina Preventiva y Salud Pública e Historia de la Ciencia
Palabras clave: Scoping review | Nurse specialist | Crohn’s disease | Life experience | Meaning | Social support | Inflammatory bowel disease
Área/s de conocimiento: Enfermería | Medicina Preventiva y Salud Pública
Fecha de publicación: 23-jul-2014
Editor: SAGE Publications
Cita bibliográfica: Clinical Nursing Research. 2014, July 23. doi:10.1177/1054773814543828
Resumen: This scoping review identifies and describes relevant studies related to the evidence published on life experiences and perceived social support of people affected by Crohn’s disease. Twenty-three studies were definitely selected and analyzed for the topics explored. The overall findings show patients’ needs and perceptions. There is a lack of evidence about patients’ perceived needs as well as the understanding of social support that has contributed to improve their life experiences with that chronic illness. Lack of energy, loss of body control, body image damaged due to different treatments and surgeries, symptoms related to fear of disease, feeling burdened loss related to independence, and so on are some of the concerns with having to live with those affected by the Crohn. To underline those experiences through this scoping review provides valuable data for health care teams, especially for the nursing profession, considered by those affected as one of the main roles along the whole pathological process. This review provides the basis for developing broader research on the relatively underexplored topics and consequently improves specific programs that could address patients’ needs.
Patrocinador/es: This research is supported by the grant VALI+D (ACIF/2013/141) awarded to Sofía García-Sanjuán (Conselleria de Educación, Cultura y Deporte, Generalitat Valenciana, Spain).
URI: http://hdl.handle.net/10045/44432
ISSN: 1054-7738 (Print) | 1552-3799 (Online)
DOI: 10.1177/1054773814543828
Idioma: eng
Tipo: info:eu-repo/semantics/article
Derechos: © 2014 by SAGE Publications
Revisión científica: si
Versión del editor: http://dx.doi.org/10.1177/1054773814543828
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